I’ve tried to put up the pics from the other day, I’m working on Prem’s laptop in his eye clinic just along from the house and the connection is much better.
To school today, came not the child Jeya that I was expecting, but two other children, one a boy of two and a half who howled for the first half hour as we tried to talk to his mum, then once he stopped crying and looked at the things I was playing with he calmed down and didn’t want to leave! He has CP and is fairly delayed in all aspects of his development, we’ve arranged for him to come in tomorrow for an hour to see how things go. The other is a young girl of 6 with an unfortunate alopecia condition which has resulted in her hair growing in clumps around her head, so the parents have been keeping her head shaved to try to minimise the strange appearance, she came in wearing the most beautiful sun bonnet. She has CP too and some very strange abnormalities of her feet. I cannot see her weight bearing at all at least for some time until something can be done for her feet. She has a habit of throwing everything within reach and at 6 has some strength behind her throw, I can also testify that she has a strong grip and enjoys pulling hair! She too is coming in tomorrow but at a different time to the little boy, I’m also seeing Sanjay on a daily basis too. Along with his general lower body weakness in his muscles, he has weakness in his bladder muscles too and they don’t wear pads here! I am getting very good at jumping off the mat as another flood happens! The physio is working with us to try to look at his muscle tone in general and develop an appropriate exercise programme!
One plus is that I have managed to get the new physio interested in working with Thilagavadi and I which is great and may help to keep her own professional enthusiasm up as otherwise her job is very routine and I don’t think much of a challenge for her, in fact she has already asked if I am aware of any physio positions in Scotland!
Language, and my Scottish accent can sometimes cause problems and I have realised that it is easier for people to read English than to talk in it with me on a professional level, so I have written two short essays in the last few days in response to requests! I’ll see how they have gone down next week. One is on communication and the other on the multi sensory approach! Though my essay writing days were over now I’m a depute!